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FULL MSNBC Hardball with Chris Matthews 7/26/19 Trump Breaking Information Right now July 26, 2019 – jj
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FULL MSNBC Hardball with Chris Matthews 7/26/19 Trump Breaking Information Right now July 26, 2019



FULL MSNBC Hardball with Chris Matthews 7/26/19 Trump Breaking News Today July 26, 2019
With $2.1 million price tag, families fight to get lifesaving drug for babies covered
“With no treatment, most children will pass away by age 2.”
When the Food and Drug Administration approved Zolgensma, a lifesaving medication to treat spinal muscular atrophy, parents of young children with the rare and fatal disease rejoiced.

But that relief was quickly tempered by the price tag: $2.1 million — the most expensive ever for a single dose of a drug.

“I was pretty shocked,” Sarah Stanger of Monroe, Ohio, said. “You know, as a teacher we definitely don’t have $2.1 million, and I don’t know anybody who does.”

Stanger’s son, Duke, was diagnosed with the condition an as infant. When Zolgensma was approved in May, doctors said that the medicine was the best option for Duke. But the family’s insurance company refused to pay for it.

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